Ryleigh Hillcoat-Bee’s story is now frozen in medical notes, legal files, and the memories of a family who did everything they were told, yet still lost their child. They trusted a system that saw the same disturbing test results they did, but chose a narrower, less urgent explanation. While they clung to reassurances, her body was already fighting a battle no one had truly named.

The coroner’s scrutiny now forces those decisions into the open: why weren’t neuromuscular specialists called sooner, why were “extraordinarily high” markers of muscle breakdown not treated as an emergency, and why did a three-year-old have to deteriorate before anyone grasped the scale of the danger? For her parents, no verdict will rewrite the ending. But by demanding answers, they are insisting that Ryleigh’s life means something more than a tragic oversight—that her death becomes the turning point that saves another child.