Millie and Louis’s world split in two the day they learned one of their twins had anencephaly. They were forced to love and grieve at the same time: planning for first breaths and final goodbyes in a single pregnancy. When Skye died shortly after birth, their arms were half full and their hearts completely broken. The hardest moments came when well-meaning strangers cheerfully asked, “Just the one?”—never knowing there should have been two.
Out of that silent agony, they created the Skye High Foundation and the purple butterfly stickers now used in NICUs worldwide. A tiny symbol on an incubator quietly tells staff and visitors that one baby in a multiple birth has died, sparing families from accidental wounds. They cannot rewrite Skye’s story, but through support groups and those fragile butterflies, Millie and Louis are making sure no parent has to grieve in invisibility again.
