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Dad Is ‘Trapped in His Own Body’ After St.r0ke Leads to Locked-In Syndrome

A Life-Altering Str0ke at 38

At just 38 years old, Gareth Bayley suffered a str0ke in his brain stem that changed his life overnight. It left him with locked-in syndrome—a rare and devastating condition that left him fully conscious but unable to move or speak.

“He’s trapped in his own body,” says his wife, Karen.

The Sudden Onset

In April 2022, Gareth began experiencing persistent headaches. A week later, he c0llapsed at work after suffering a seizure. Karen rushed to the scene and found him in critical condition. Doctors later confirmed he’d had a brain stem str0ke, triggering locked-in syndrome.

A Rare and Cruel Condition

Locked-in syndrome is extremely rare. According to the Str0ke Association, it’s most often caused by a brain stem str0ke. While patients remain mentally present, they typically lose all voluntary muscle control except for limited eye movement.

“He remembers everything,” Karen explains. “He just can’t speak or move. Doctors warned he’d likely never recover beyond slight eye motions.”

Signs of Hope

Despite the grim prognosis, Gareth began to show signs of progress. He can now smile, laugh, and express himself with facial movements—milestones the couple once thought impossible.

“Gareth is a fig.hter,” Karen says. “Every little improvement gives us hope.”

A Path to Greater Recovery

Karen is now raising funds to buy Gareth a Functional Electrical Stimulation (FES) bike. This personalized stationary bike sends electrical impulses to paralyzed muscles, helping them regain strength and function.

The bike is expensive. Although they applied for funding, their request was denied. It wasn’t considered “essential.” But for Karen and her family, it absolutely is.

“If we can get him this bike, it could be life-changing,” she says.

Fig.hting for Independence

Karen launched a GoFundMe campaign to make the purchase possible. On the fundraiser page, she shares how the bike could boost Gareth’s muscle strength, reduce spasms, improve joint mobility, and help prevent pressure sores.

More importantly, she says, “It could give him the best shot at recovery, independence, and dignity.”

A Father’s Wish: To Come Home

Gareth currently lives in a care facility. But his ultimate goal is simple: he wants to return home to be with Karen and their children, Brooke and Jesse.

Karen shares his dream. “The goal is to have him back home again. That’s what we’re working toward every single day.”

K

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